Undiagnosed Diseases Program
Client: Genetic Services WA
Office of Population Health Genomics
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The Centre for Transformative Work Design is currently partnered with Genetic Services WA and the Office of Population Health Genomics (OPHG) to study the Western Australian Undiagnosed Diseases Program (UDP-WA), an interdisciplinary ‘expert panel’ which reviews the cases of chronically undiagnosed patients.
The aim of the current project is to understand the cognitive, motivational, and social-psychological factors that contribute to – or inhibit – the success and sustainability of the program. Data collection is ongoing and includes interviews with the UDP-WA expert clinicians, short written surveys, and systematic observation of the monthly expert panel meetings.
The ultimate goal of the project is to develop evidence-based recommendations on how to further enhance and sustain the success of the UDP-WA, specifically by improving clinician engagement and communication in the expert panel meetings. These recommendations will be developed in consultation with the OPHG and UDP-WA management team, and will include follow-up evaluations.
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Industry outcomes
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The proposed immediate outcome of the project is a comprehensive, multi-level framework of the UDP-WA that describes the factors that contribute to the current program’s success.
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Dissemination of these findings will provide significant support for the further globalisation and sustainability of UDPs internationally.
