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Undiagnosed Diseases Program

Home > Projects > Undiagnosed Diseases Program

Project members

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Project lead

Professor Sharon Parker

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Project lead

Florian Klonek

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Project lead

Georgia Hay

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Overview

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We have partnered with Genetic Services WA and the Office of Population Health Genomics (OPHG) to study the Western Australian Undiagnosed Diseases Program (UDP-WA), an interdisciplinary ‘expert panel’ which reviews the cases of chronically undiagnosed patients.

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The aim

 

The current project is to understand the cognitive, motivational, and social-psychological factors that contribute to or inhibit the success and sustainability of the program. Data collection is ongoing and includes interviews with the UDP-WA expert clinicians, short written surveys, and systematic observation of the monthly expert panel meetings.

With the final goal being to develop a evidence-based recommendations on how to further enhance and sustain the success of the UDP-WA, specifically by improving clinician engagement and communication in the expert panel meetings. These recommendations will be developed in consultation with the OPHG and UDP-WA management team, and will include follow-up evaluations.​​

Industry outcomes

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